My Beautiful Boy

Far out, I am so tired of all this.

Today we had an appointment with Dr Callary again which went quite well.  Although, he does believe now that Corey does likely have a disorder that is neurological and not just bad behavior.  He thinks it may very well be Aspergers but is still not confident enough to actually diagnose it but says that the more he learns about Corey the more that he can see the signs of Aspergers in him.

The problem we have now is that if it is Aspergers then this is something he was born with and it’s really not his fault that he acts the way he does.  But that doesn’t make it any easier for us to deal with.  How do you deal with this?

He says – and I have to agree -  that it’s not likely that we can just try to get Corey to make the effort to change because although when we talk about it he may nod his head and agree but he really doesn’t comprehend it.  He said that it needs to be a whole family effort and we will need to learn to live with this and work with it as a family.  The hope is that if we learn to deal with it differently and change a few things, become more organised that sort of thing, then hopefully Corey will be more comfortable and will be less anxious all the time. 

Asperger children like things to be done a certain way and that is just Corey, he likes things to be done the ‘right way’ or his way and so they really need some organisation in their lives and routine.  I, lately, am just so disorganised it’s not funny which really is the worst environment for Corey to be in.  So it really does mean big changes for us and it all seems so hard.

I just don’t have the energy to deal with all this anymore.

I’m still reading the Fed Up book and will be up to the elimination diet bit soon, which I know is going to be hard to put into place too.  I really hope diet can make a difference because if it doesn’t I don’t know how I’m going to cope with this much longer.

Ok, I’ve raved quite a bit now, but I really needed to get that out

Thanks
Cya
Sheryl